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Discover helpful tools and resources

Find tools for understanding your disease as well as helpful resources to help you along the way.


Fabry Resources

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Fabry Forward Newsletter

The Fabry Forward newsletter offers tips and advice to help you prepare for your next appointment

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Fabry Effects Checklist

A printable checklist to use during your next doctor appointment

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Fabry Discussion Driver

Plan for future doctor appointments and help guide discussions with your healthcare providers. With this tool, you can describe how Fabry is affecting you, discuss treatment, ask questions, set future goals, and more

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Insurance 101 Brochure

Explains the basics of insurance coverage and the variety of options available to people with Fabry

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My Fabry Tracker

Learn how to track and monitor Fabry and its varying symptoms

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Find more facts about Fabry disease, and get connected to helpful information and education that can guide you on your journey

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LOPD Resources

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Pompe Discussion Driver

This guide will help focus your conversations with your doctor so you don’t forget anything important to discuss

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Insurance Brochure

Explains the basics of insurance coverage and the variety of options available to people with LOPD

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Pompe & You

Learn more about LOPD, and get connected with a greater community of Pompe disease experts, advocates, and people living with your condition

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We can answer any questions you have.

Connect with your AMICUS ASSIST team now:

1-833-AMICUS-A (1-833-264-2872)

Monday–Friday, 8 AM–8 PM ET

Hablamos español. Administradores de casos de habla hispana están disponibles. Llamanos a +1-833-AMICUS-A (+1-833-264-2872) Lunes–Viernes de 8 AM–8 PM ET