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Find support throughout your late-onset POMPE disease (LOPD) journey


A familiar face to help you move forward

If you have LOPD, you know that a little bit of help can go a long way. AMICUS ASSIST can provide the education and support you need throughout every step of your treatment journey.

As soon as you enroll, you’ll be assigned both a Patient Education Liaison and a Case Manager.

What is a Patient Education Liaison (PEL)?

Your dedicated PEL will offer education and support by:

Answering questions-icon

Answering questions about LOPD and your Amicus medication

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Providing tips to help you prepare for your treatment days

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Helping you have more productive conversations with your care team

Please remember, while your PEL is available to provide support throughout your treatment, your healthcare provider is your go-to resource for any questions related to your care.

To connect with a PEL, click here >

What is a Case Manager?

Your Case Manager will help you navigate treatment access and financial resources by:


Verifying and explaining your insurance coverage

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Helping coordinate your prescription deliveries

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Identifying possible sources of financial assistance

How can both help me?

With the combined knowledge and expertise of a PEL and a Case Manager, we can work together to ensure that you and your care team have all the information needed to support your treatment with an Amicus medication.

Do you need financial assistance? We can help with that

No matter what your financial situation looks like, help may be available. Your Case Manager can assist you in identifying possible sources of financial assistance, including:

Co-Pay Assistance*

Eligible, commercially or privately insured patients may pay as little as $0 per month for treatment

Amicus Patient Assistance Program

For eligible, uninsured, or underinsured patients

Support from independent charitable foundations

AMICUS ASSIST can help identify independent charitable foundations that may be able to provide support. These foundations exist independently of Amicus and have their own eligibility criteria and application processes. Availability of support from the foundations is determined solely by the foundations.

*Co-pay assistance is only valid for patients using commercial or private insurance for their Amicus medication. It is not valid for prescriptions reimbursed in whole or in part by Medicare, Medicaid, Veterans Administration, TRICARE, Department of Defense, similar federal or state programs, or where prohibited by law. Offer is only available for U.S. residents who have a valid prescription for an Amicus product. In accordance with state law, infusion-related costs are not covered for individuals residing in RI. Patients must be prescribed the medication for an approved use. Co-pay assistance is subject to annual maximum limits. Additionally, patients cannot seek reimbursement from their health insurance or other patient assistance programs for their co-pay. Amicus reserves the right to rescind, revoke, or amend this offer without notice.

The Amicus Patient Assistance Program provides free product to those who qualify. Contact AMICUS ASSIST for details.

Amicus makes no representation or guarantee concerning reimbursement or coverage for any service or item. Information provided through the AMICUS ASSIST program does not constitute medical advice and is not intended to be a substitute for a consultation with a licensed healthcare provider or applicable third-party payer(s). Amicus reserves the right to modify the program at any time without notice.

Interested in helpful tools? We've got you covered

Pompe discussion driver-thumbnail
Pompe Discussion Driver

This guide will help focus your conversations with your doctor so you don't forget anything important to discuss

Go Now
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Insurance Brochure

Explains the basics of insurance coverage and the variety of options available to people with LOPD

Download Now
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Pompe & You

Learn more about LOPD, and get connected with a greater community of Pompe disease experts, advocates, and people living with your condition

Explore Now

We can answer any questions you have.

Connect with your AMICUS ASSIST team now:

1-833-AMICUS-A (1-833-264-2872)

Monday–Friday, 8 AM–8 PM ET

Hablamos español. Administradores de casos de habla hispana están disponibles. Llamanos a +1-833-AMICUS-A (+1-833-264-2872) Lunes–Viernes de 8 AM–8 PM ET

Helpful FAQs: LOPD Frequently Asked Questions

There are a number of organizations dedicated to providing support and education to people with LOPD. For a list of patient advocacy organizations, please visit the AMICUS ASSIST Resource Library.

Yes, we are pleased to help you identify possible sources of financial assistance, including co-pay assistance, the Amicus Patient Assistance Program, and help connecting you to support from independent charitable foundations. To learn more, please contact your Case Manager anytime Monday–Friday, 8 AM–8 PM ET.

There are a number of organizations dedicated to providing support and education to people with LOPD. For a list of patient advocacy organizations, please visit the AMICUS ASSIST Resource Library.

If you have questions about your treatment, there are several resources available to help:

  • Be sure to consult your doctor. Your doctor is the best resource to answer any treatment-specific questions.
  • Contact your AMICUS ASSIST Patient Education Liaison (PEL) at 1-833-AMICUS-A (1-833-264-2872). Call us toll-free, Monday–Friday, 8 AM–8 PM ET, with any questions about your Amicus medications or the resources that may be available to you through AMICUS ASSIST.
  • Visit your treatment's website. Each site has information on how your treatment works, how to take it, and more.

Connect with a Patient Education Liaison

Complete the form below to get started