Find support throughout your late-onset POMPE disease (LOPD) journey
A familiar face to help you move forward
If you have LOPD, you know that a little bit of help can go a long way. AMICUS ASSIST can provide the education and support you need throughout every step of your treatment journey.
As soon as you enroll, you’ll be assigned both a Patient Education Liaison and a Case Manager.
What is a Patient Education Liaison (PEL)?
Your dedicated PEL will offer education and support by:
Answering questions about LOPD and your Amicus medication
Providing tips to help you prepare for your treatment days
Helping you have more productive conversations with your care team
Please remember, while your PEL is available to provide support throughout your treatment, your healthcare provider is your go-to resource for any questions related to your care.
To connect with a PEL, click here >
What is a Case Manager?
Your Case Manager will help you navigate treatment access and financial resources by:
Verifying and explaining your insurance coverage
Helping coordinate your prescription deliveries
Identifying possible sources of financial assistance
How can both help me?
With the combined knowledge and expertise of a PEL and a Case Manager, we can work together to ensure that you and your care team have all the information needed to support your treatment with an Amicus medication.
Do you need financial assistance? We can help with that
No matter what your financial situation looks like, help may be available. Your Case Manager can assist you in identifying possible sources of financial assistance, including:
*Co-pay assistance is only valid for patients using commercial or private insurance for their Amicus medication. It is not valid for prescriptions reimbursed in whole or in part by Medicare, Medicaid, Veterans Administration, TRICARE, Department of Defense, similar federal or state programs, or where prohibited by law. Offer is only available for adult U.S. residents who have a valid prescription for an Amicus product. In accordance with state law, infusion-related costs are not covered for individuals residing in RI. Co-pay assistance is subject to annual maximum limits. Additionally, patients cannot seek reimbursement from their health insurance or other patient assistance programs for their co-pay. Amicus reserves the right to rescind, revoke, or amend this offer without notice.
†The Amicus Patient Assistance Program provides free product to those who qualify. Contact AMICUS ASSIST for details.
Amicus makes no representation or guarantee concerning reimbursement or coverage for any service or item. Information provided through the AMICUS ASSIST program does not constitute medical advice and is not intended to be a substitute for a consultation with a licensed healthcare provider or applicable third-party payer(s). Amicus reserves the right to modify the program at any time without notice.
Interested in helpful tools? We’ve got you covered
Pompe Discussion Driver
This guide will help focus your conversations with your doctor so you don't forget anything important to discuss
Go Now
Pompe & You
Learn more about LOPD, and get connected with a greater community of Pompe disease experts, advocates, and people living with your condition
Explore Now
Insurance Brochure
Explains the basics of insurance coverage and the variety of options available to people with LOPD
Download
Pompe Discussion Driver
This guide will help focus your conversations with your doctor so you don't forget anything important to discuss
Go Now
Insurance Brochure
Explains the basics of insurance coverage and the variety of options available to people with LOPD
Download
Pompe & You
Learn more about LOPD, and get connected with a greater community of Pompe disease experts, advocates, and people living with your condition
Explore Now
Helpful FAQs: LOPD Frequently Asked Questions
