Discover helpful tools and resources
Find tools for understanding your disease as well as helpful resources to help you along the way.
Fabry Resources
Fabry Forward Newsletter
The Fabry Forward newsletter offers tips and advice to help you prepare for your next appointment
Download
Fabry Discussion Driver
Plan for future doctor appointments and help guide discussions with your healthcare providers. With this tool, you can describe how Fabry is affecting you, discuss treatment, ask questions, set future goals, and more
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Fabry Forward Newsletter
The Fabry Forward newsletter offers tips and advice to help you prepare for your next appointment
Download
Fabry Discussion Driver
Plan for future doctor appointments and help guide discussions with your healthcare providers. With this tool, you can describe how Fabry is affecting you, discuss treatment, ask questions, set future goals, and more
Go Now
Insurance 101 Brochure
Explains the basics of insurance coverage and the variety of options available to people with Fabry
Download
FabryConnect.com
Find more facts about Fabry disease, and get connected to helpful information and education that can guide you on your journey
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Fabry Patient Advocacy Organizations
LOPD Resources
Pompe Discussion Driver
This guide will help focus your conversations with your doctor so you don't forget anything important to discuss
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Pompe & You
Learn more about LOPD, and get connected with a greater community of Pompe disease experts, advocates, and people living with your condition
Explore Now
Insurance Brochure
Explains the basics of insurance coverage and the variety of options available to people with LOPD
Download
Pompe Discussion Driver
This guide will help focus your conversations with your doctor so you don't forget anything important to discuss
Go Now
Insurance Brochure
Explains the basics of insurance coverage and the variety of options available to people with LOPD
Download
Pompe & You
Learn more about LOPD, and get connected with a greater community of Pompe disease experts, advocates, and people living with your condition
Explore Now
Pompe Patient Advocacy Organizations
